The following are some of the most frequently asked questions about the Annual SMA Research & Clinical Care Meeting. If you have additional questions, please email research@curesma.org
I missed out on online registration, can I register on-site?
What is the discounted room rate at the Walt Disney World Swan Hotel?
Are any meals included with my conference registration?
Is parking included in the hotel room rate or is parking additional?
Are refunds provided for registration if I cannot attend?
Is there travel/hotel/registration assistance provided to abstract presenters?
Are attendees of the Research & Clinical Care Meeting able to utilize the children's program?
What are the COVID protocols & precautions for the 2022 Annual SMA Conference?
Will Cure SMA be offering CME/CE credit at the meeting?
- Online registration for this year's Research and Clinical Care Meeting in Anaheim, CA is closed as of May 7th. If you missed out on online registration, you will still be able to register onsite.
- If you plan on attending and registering onsite, please email conference@curesma.org with the full name(s) and age(s) of the attendee(s) so we can be sure to accommodate you and set you up to register onsite.
- We will send you your link to book your discounted hotel room and purchase discounted Disney theme park tickets if you are interested.
- Onsite pricing is as follows:
- Student/Fellow/Trainee/Non-Physician HCP $350
- Academic Researcher/Primary Investigator/Physician/Non-profit $650
- Industry $2000
What is the discounted room rate at the Walt Disney World Swan Hotel?
- Attendees of the Research & Clinical Care Meeting will be provided a link upon completing registration to reserve your room at the Walt Disney Swan Hotel. The special room rate for registered conference attendees is $259/night plus taxes and fees. A limited number of rooms are reserved at this rate so please book now before rooms sell out.
Are any meals included with my conference registration?
- There will be several meals included in your registration fee for all attendees of the Annual SMA Research and Clinical Care Meeting. More information on these meals will be announced at a later date.
Is parking included in the hotel room rate or is parking additional?
- Standard self-parking is complimentary for registered attendees staying in the Annual Research & Clinical Care Meeting hotel room block.
Are refunds provided for registration if I cannot attend?
- Yes, we do provide refunds for individuals who decide to cancel up until Monday, May 9th. There will be a $25 non-refundable processing fee that will be deducted from the refund.
Is there travel/hotel/registration assistance provided to abstract presenters?
- Yes, upon submission of your abstract you will receive details on how to register at a 50% discounted price.
- Attendees whose abstract is accepted for an oral or poster presentation, will receive three nights hotel paid for by Cure SMA.
- All travel is the responsibility of the individual attendee.
Are attendees of the Research & Clinical Care Meeting able to utilize the children's program?
- Please note, the Children’s Program that is offered for Community Conference Attendees is NOT available for Research or Clinical Care attendees and their families due to the large volume of community conference attendees.
- Additional family members do need to be registered for the Community Conference to be able to attend any of the Community Conference events, such as the Meet & Greet, Family Friendly Poster Session, PJ Party and Cure SMA’s Saturday Evening at the Park! Please contact conference@curesma.org for further information.
What are the COVID protocols & precautions for the 2022 Annual SMA Conference?
- At this time, there are no COVID specific restrictions or requirements that are in place for the hotel or the local area in regard to masking or vaccinations. Moving forward, our general approach is to manage the situation with COVID as we would for any other virus. Therefore, we recommend the following.
- We strongly encourage vaccinations be up to date including recommended booster vaccinations.
- If anyone has symptoms or recent exposure, please cancel plans to attend the conference. You can contact Cure SMA for your cancellation, refunds, etc.
- Should you become sick with symptoms of any illness while attending the conference, please immediately stop attending sessions.
- Anyone who wants to wear a mask, they should feel comfortable and supported to do so.
- Pay attention to physical distancing and contact with other individuals.
- As always at the conference, and generally in our SMA community, we ask that everyone respect and value others personal choices and decisions.
We are excited to get back together in-person, and we are looking to do this in the safest way possible with COVID now being a part of our day-to-day lives. Attending the Research and Clinical Care Meeting has the risk of exposure to COVID, and with your help we aim to minimize this risk while carrying out our important events and activities.
Please note that we will not be conducting any formal COVID tracking, tracing, or notifications during this conference, but we do ask for anyone who may test positive during or directly after the meeting to notify us, which we will keep strictly anonymous.
We will keep you all updated if any of the above guidelines should change. - A list of available testing sites in Anaheim can be found here.
Will Cure SMA be offering CME/CE credit at the meeting?
- Yes, the clinical care session of the Research & Clinical Care Meeting will offer CME/CE credits. More information will be provided in the coming months.